"As most of you know us some don’t. We are the proud parents of three wonderful daughters Logan, Layton and Lyla and we are expecting twins! A boy Landyn Tom and girl Sarah Larsyn We just moved to Rincon, GA in January from our hometown of Blakely, GA.
On April 27th at 23 weeks gestation our sweet baby boy Landyn was diagnosed with a terminal birth defect called Alobar Holoprosencephaly. This is when the brain does not separate into the three hemispheres during the first 4 to 6 weeks of gestation.
We are devastated but we have put our faith in God. God made Landyn perfect and our goal is to use this gift from God and to make sure that Landyns short life touches many. There is no foot so small that it can’t leave an imprint on the world.
As for the medical side of things. We are doing well. I go to the Doctor once a week where they monitor both babies. Larsyn is perfect and Landyn is a strong little boy. His heart is strong and he kicks just a much as his sister. The diagnoses for Landyns birth is that he may live 20 minutes or a couple of hours. Babies that survive to birth and delivery are considered miracles as only 3 % of babies with this survive until birth.
We thank God for every minute we have with Landyn. We are so proud of his strength and the strength he has given to us. We pray now for a miracle, that Landyn may live long enough to feel our touch and unconditional love before he goes to Heaven.
God has blessed our family in ways we didn't understand at first. But through our faith and trust in Him, we came to realize just how much purpose Landyn’s life serves on this earth. Landyn has unlocked the deeper meaning of faith, life, love and hope, and has forever changed the lives of many. We are blessed to be part of such an incredible life that is meant to touch the lives of many.
Our specific prayers are that I carry Landyn and Larsyn long enough to ensure that Larsyn is healthy and would not require any time in the NICU and the same for Landyn. So that we may spend whatever time he has in our arms. We pray for strength and guidance with this and that God may lead us in a way that we may help others when they are faced with a journey like ours."